Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco.

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This discussion topic has been automatically created of petition Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco..


Anonymous

#1

2016-11-11 21:13

Because I'm fighting for my daughter

Guest

#2

2016-11-11 21:47

We are all behind ye love xx

Guest

#3

2016-11-11 22:12

I also have a 4 yr old little girl with CF (Jessica) even tho she doesn't benefit from this drug ( because she has two different types of mutations) I know the struggle and the heartache ever parent goes through , and everychild deserves a chance at life and to enjoy life without suffering .

Guest

#4

2016-11-11 22:30

Our childrens' health is priceless! Do the right thing!

Guest

#5

2016-11-11 23:22

Because every child with cystic fibrosis should be entitled to this drug

Guest

#6

2016-11-11 23:24

Because i believe this drug should be available to all cf patients.

Guest

#7

2016-11-11 23:25

4 year old Chloe deeserves the best life possible

Guest

#8

2016-11-12 00:44

For a great great cause and it's for a friend in need

Guest

#9

2016-11-12 08:07

My cousins son needs this medication

Guest

#10

2016-11-12 08:50

I signed this petition because I have a family member who need some this medication.

Guest

#11

2016-11-12 09:21

I have a friend that needs this for her child

Guest

#12

2016-11-12 09:40

It should not be a question of money or age group (under 5) when a drug is available that can reduce suffering.

Guest

#13

2016-11-12 10:04

No one should be denied the right to a better quality of life in this day and age. Why suffer needlessly x

Guest

#14

2016-11-12 10:51

I signed for Chloe <3 and all the other little troopers that need and deserve this drug!

Guest

#15

2016-11-12 11:04

To help the kids

Guest

#16

2016-11-12 15:05

I want this drug approved for my 3 year old niece with CF. This drug would knock out one of the particular genes she carries and change her life.

Guest

#17

2016-11-12 15:43

To gain access to Kalydeco for a relative wth cystic fibrosis.

Guest

#18

2016-11-12 21:39

I have signed as I believe these children should rightfully be given this drug no matter their age. This is discrimination which should be outlawed!

Guest

#19

2016-11-12 23:02

Very important that this message gets back to the Irish government to help parents with children with this disease

Guest

#20

2016-11-12 23:24

Gwan and do it !

Guest

#21

2016-11-13 11:06

I myself have COD , my Niece has CF .The West of Ireland has high level of Asthrma, Bronchial and CF conditions and it also takes up an enormous amount of. Bed Days in our few remaining hospitals , all with reduced capacity. It only makes Common and Financial Sense in the long run . Bet if any Minister had a child with CF it would get passed quickly- only then would understand, the worry of having a child with CF and lack of special facilities and good Medication for their CF child.

Guest

#22

2016-11-13 12:36

Because everyone deserves the most normal life they can have .

Guest

#23

2016-11-13 18:32

My granddaughter Isabelle has cystic fibrosis and her parents are
trying to access this drug

Guest

#24 Re:

2016-11-13 19:00

#23: -  

 in the 2-5 yr olds category? Does isabelles mum and dad know about our group? 


Guest

#25

2016-11-13 21:45

On behalf of my grandniece who suffers with cystic fibrosis