Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco.
|
Guest |
/ #622016-11-15 10:17I have a colleague with a Child with CF aim the same position, he is eligible for Kalydeco but they are having to fight for it as he is under 5! |
|
Petition ad
Promote here
Petition Against the Installation of a Biodigester at Wilson Rd, Fairfield Township, Madison County, Ohio
Petition Against the Installation of a Biodigester at Wilson Rd, Fairfield Township, Madison County, We, the undersigned, residents and concerned citizens of Fairfield Township and Madison County, Ohio, respectfully submit this petition to oppose the installation of a biodigester facility at Wilson Rd. While we recognize the value of renewable energy, the proposed location raises serious concerns about environmental impact, public safety, and local infrastructure. These concerns include air a...
Petition ad
Promote here
Support Subsonic Society - Save our work places and Oslo's music history.
This message expresses strong concerns about a recent decision by the Norwegian government, particularly the Ministry of Culture, led by Culture Minister Lubna Jaffery and Justice Minister Emilie Enger Mehl, to allocate NOK 77 million to the Jewish Museum Oslo. The result of this decision will force the eviction of the Subsonic Society, a music studio complex with 12 full-time jobs, 25 years of Norwegian music history, and a central role in Oslo’s music production scene, from its premises i...
Petition ad
Promote here
Add petition "Kalydeco and Orkambi: Our Cystic Fibrosis Warriors fight for life saving wonder drugs Orkambi and Kalydeco." to this listNo Nukes for AI: Clearly a bad idea
Petition to Stop the Construction of Nuclear Power Plants for AI Data Centers Introduction: Nuclear power poses a serious threat to public safety and the environment. The construction of nuclear power plants to power AI data centers is a dangerous and short-sighted decision. Large Corporations are obtaining permits to build nuclear powerplants to power their AI data centers. This is clearly a bad idea. The potential for accidents, the long-term consequences of nuclear waste which cannot be dis...
Is there something you want to change?
Change doesn't happen by staying silent. The author of this petition stood up and took action. Will you do the same? Start a social movement by creating a petition.
Start a petition of your ownOther petitions you might be interested in
Proposed REGO price increase for motorcycles
1462 Created: 2024-10-03
| Time period | Number of signatures |
|---|---|
| All time | 1462 |
| 2024 | 1462 |
"Cap Rates for South Wairarapa: Cap 2025/26 Rate Increase at 3%"
554 Created: 2024-10-16
| Time period | Number of signatures |
|---|---|
| All time | 554 |
| 2024 | 553 |
Enough with the rates increase in Timaru District
435 Created: 2024-07-04
| Time period | Number of signatures |
|---|---|
| All time | 435 |
| 2024 | 435 |
Support community safety. Reopen Clive Police Station.
272 Created: 2024-10-21
| Time period | Number of signatures |
|---|---|
| All time | 272 |
| 2024 | 272 |
PETITION OPPOSING ' PROPERTY OVERLAYS' IN THE WAITAKI DRAFT DISTRICT PLAN 2022
212 Created: 2024-03-05
| Time period | Number of signatures |
|---|---|
| All time | 212 |
| 2024 | 212 |
People of New Zealand opposed to WHO Pandemic Treaty 28/05/22
971 Created: 2022-05-20
| Time period | Number of signatures |
|---|---|
| All time | 971 |
| 2024 | 210 |
Oppose National Park Name Change to Waimarino
174 Created: 2024-01-17
| Time period | Number of signatures |
|---|---|
| All time | 174 |
| 2024 | 174 |
Bring Seventeen to Australia
754 Created: 2024-08-06
| Time period | Number of signatures |
|---|---|
| All time | 754 |
| 2024 | 754 |
Petition to stop the erection of new 5G transmitters in Devonport
123 Created: 2024-08-12
| Time period | Number of signatures |
|---|---|
| All time | 123 |
| 2024 | 122 |
Oppose Palmerston North Bus Route Changes 19th February 2024
145 Created: 2023-12-14
| Time period | Number of signatures |
|---|---|
| All time | 145 |
| 2024 | 116 |
Ban the Box (Planter Boxes - Mapua 'Streets for People' Project
109 Created: 2024-02-05
| Time period | Number of signatures |
|---|---|
| All time | 109 |
| 2024 | 109 |
Please remove concrete lane separators from Mapua
93 Created: 2024-06-24
| Time period | Number of signatures |
|---|---|
| All time | 93 |
| 2024 | 93 |
Stop paid parking for Motorcycles and Scooters in Wellington
73 Created: 2024-06-13
| Time period | Number of signatures |
|---|---|
| All time | 73 |
| 2024 | 73 |
Retain The Pine Trees Kaikoura South Recreation Area
66 Created: 2024-07-13
| Time period | Number of signatures |
|---|---|
| All time | 66 |
| 2024 | 66 |
Demand a satisfactory response from CertiK
7556 Created: 2024-03-27
| Time period | Number of signatures |
|---|---|
| All time | 7556 |
| 2024 | 7555 |
Support for Daisy Corbet's New Zealand Residency
137 Created: 2024-08-01
| Time period | Number of signatures |
|---|---|
| All time | 137 |
| 2024 | 137 |
NZTA should reduce the speed limit form 70k to 50k in the residential area of SH2 - Main North Road, Bay View
137 Created: 2022-04-07
| Time period | Number of signatures |
|---|---|
| All time | 137 |
| 2024 | 60 |
Road Safety for Kaitoke Community
125 Created: 2023-12-07
| Time period | Number of signatures |
|---|---|
| All time | 125 |
| 2024 | 50 |
Omokoroa Pedestrian Crossings
81 Created: 2023-12-04
| Time period | Number of signatures |
|---|---|
| All time | 81 |
| 2024 | 41 |
A Petition To Install Safety Fences Around Gisborne Playgroundsin Gisborne
28 Created: 2024-04-13
| Time period | Number of signatures |
|---|---|
| All time | 28 |
| 2024 | 28 |
Petitions.nz
We provide free hosting for online petitions. Create a professional online petition
by using our powerful service. Our petitions are mentioned in the media every day, so creating a petition is a great way to get noticed by the
public and the decision makers.